Things are going good. After this past weekend I was concerned when I found out that a visiting relative gave him 3 bites of mac and cheese, but it had little to no effect on him that I could see.
Yesterday we started vitamins and minerals, we're using Kirkman Labs Super Nu P5P in a liquid, and I also picked up some magnesium sulfate cream. Just a tiny tiny little dab is equal to what he was getting in the bath with the epsom salts, and since its a cream it doesn't wash off like it does in the bathtub. I'll keep a record of it and his reactions here for comments on it. He's still on no phenols but has taken to eating pears! Any new food is good news. I think we'll give peaches a try next. Then maybe he can consider adding in vegetables, that's a big maybe. I've been a bit concerned about his speech, I'm not sure what to make of it. He has these long drawn out conversations with us, but I can't understand but two words maybe. I feel like he's really trying to tell us something. Last night I was sitting with him while watching Blue's Clues and he was mimicking the program, yelling out "a clue!" or "right there!" and "notebook". He would look at me to tell me about it, and its almost like it was serious work to get that to come out of his mouth. Almost like he had the thoughts in his head but he couldn't formulate them into words. I wish I knew how to make it easier for him. We're heading to the beach today, last time we went he did good, he really likes sand. Hoping today will be a good one as well. --------- Tues night 2.5cc lemon-lime super nu P5P- no reaction that I could see 1 gram mag sulfate cream- got extremely hyper right after I put it on, could have been since he was over tired too, will see how it goes tonight |
Wednesday, August 18, 2004
adding in minerals and vitamin
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